Cystic Fibrosis Awareness Month

Every May, the cystic fibrosis community comes together for Cystic Fibrosis Awareness Month. Cystic Fibrosis WA has shareable resources to help you tell your story on social media this month and any time of the year, regardless of your connection to cystic fibrosis.

Cystic fibrosis is one of the most common, autosomal recessive, life-limiting diseases affecting children and adults in Australia. People with cystic fibrosis have a defective CFTR gene that causes a malfunction of the movement of salt in and out of the cells lining the exocrine system. As a result, there is a constant build-up of excessively thick and sticky mucus within the lungs, airways, and the ducts within the digestive system. At present, there is no cure for cystic fibrosis however researchers are working very hard to find one.

During Cystic Fibrosis Awareness Month, the Western Australian community comes together to help others learn about the disease and share their personal experience.

Are you someone living with cystic fibrosis? Maybe you are a parent, grandparent, carer, sibling, friend, or colleague of someone living with the cystic fibrosis. Tell your cystic fibrosis story on social media using the hashtag #CFAwarenessMonth. You can share the ways cystic fibrosis affects your life, what your treatment routine looks like, and so much more.

Follow along throughout the month of May as we share your stories on Facebook and Instagram.

6 Ways to Get Involved

1. Order a florist-arranged bouquet to be delivered on 65 Roses Day. Visit our online shop to place your order today.
2. Visit our 65 Roses Virtual Rose Garden where you can plant a rose, gift a rose or create your own garden regardless of distance.
3. Take on the 65 Roses Challenge. It can be anything from running 65 km, swimming 65 laps or cycling 65 minutes a day. 
4. Do it your way in May with a fundraiser of your choice. Host a dress up in red day, donate your birthday or organise a morning tea with friends to help us raise funds.
5. Make a once-off or recurring donation that will help improve the well-being and quality of life of people affected by cystic fibrosis and contribute to critical cystic fibrosis research.
6. Use your voice to raise awareness. Share your story on social media and tag us @cysticfibrosiswa so that we can re-post. Use the hashtag #CFAwarenessMonth so that we can follow along with your journey.

Exciting Events this Month

The month of May is jam-packed with exciting events. See other ways to support this month:

• Perth monuments will be lighting up red this May for 65 Roses Day. Discover which locations you can visit on Thursday 25 May by visiting our blog post here.
• Purchase a rose stem for yourself or a loved one for $5.00 each at local shopping centres key locations across the state. See all locations here.
• We have incredible fundraisers participating in this year’s HBF Run for a Reason. The event will take place on Sunday 21 May. Search for a fundraiser and donate directly to their cause here.