CFA Trikafta Update, 5 May 2021 Nettie Burke, CEO Cystic Fibrosis Australia   It is almost a fortnight since we heard the disappointing news that Trikafta had received a ‘deferral’ from the Pharmaceutical Benefits Advisory Committee (PBAC). Since that time Cystic Fibrosis Australia (CFA) has been meeting with key stakeholders and working behind the scenes […]

The Cystic Fibrosis Abbie Fennessy Memorial Fellowship sponsored by Mediplast  Grant Alert! Cystic Fibrosis Australia (CFA), in conjunction with Mediplast (formerly Technipro-PulmoMed), is pleased to announce the 2021 Abbie Fennessy Memorial Fellowship. The aim of the Fellowship is to improve the knowledge and skills of Allied Health Professionals working in cystic fibrosis care to benefit […]

Cystic Fibrosis WA $37,500 PhD Top Up Scholarships About Cystic Fibrosis WA Cystic Fibrosis Western Australia (CFWA) is a charitable not-for-profit association incorporated in WA, whose vision is of a world where Lives are Unaffected by Cystic Fibrosis. Today, due to improvements in early diagnosis, intervention, treatment and better pharmaceuticals, most children affected by Cystic Fibrosis […]

65 Roses 2021: Virtual Volunteers Thank you for becoming a Virtual Volunteer for 65 Roses Day. You will be playing a vital role in growing our virtual rose garden. We need your help to promote our new rose garden and encourage the people in your networks to buy, send or dedicate a rose this May, […]

CFWA wishes this was better news. The PBAC are deferring Trikafta. Please view the CFA media release below. We know this news will be very disappointing for our community. Our team are here to listen and support as always. We will support CFA in advocating towards timely re-consideration and compassionate access in the interim.   […]

Vaccinations & Testing COVID-19 Vaccinations Please note, the COVID-19 vaccine by Pfizer is preferred over COVID-19 Vaccine AstraZeneca in adults aged under 50 years. This recommendation is based on the increasing risk of severe outcomes from COVID-19 in older adults (and hence a higher benefit from vaccination) and a potentially increased risk of thrombosis with […]

How the Calm Kids, Happy Families Program Helped our Daughter Rachel shares her experience with CFWA’s Occupational Therapist (OT), Mel, and how the program has helped her family better understand their daughter’s stressors around physio and implement strategies to reduce these. I love Mel’s positivity; she is a great asset for CFWA and our families, […]