WA Cystic Fibrosis Research Collaborative Program The WA Cystic Fibrosis Research Collaborative Program is a partnership between the Western Australian Future Health Research and Innovation (FHRI) Fund and Cystic Fibrosis WA (CFWA), in collaboration with Conquer Cystic Fibrosis (CCF). Funded Research Recipient: Sarah ThomasInstitution: University of Western AustraliaYear: 2025Project Stream: 1, Postgraduate Top-Up ScholarshipsProject Title: […]

Save the date for our 2025 Parents’ Dinner. This important will be held during Carers Week and provides respite and connection for parents. When: Saturday October 18 Where: The Globe Perth in the Lounge Room We are excited to share that Maggie Harrigan will be our guest speaker on the night. Maggie worked as a […]

Save the date for the 2025 Sibs & Kids’ Camp! Our 2025 Sibs & Kids’ Camp will be held in the first week of the term 3 school holidays. When: Tuesday 30 Sept- Thursday 2 Oct Where: Woodman Point Recreation Camp The 2 night camp is for kids aged 8-16 with a sibling or parent with CF. […]

65 Roses Day 2025 was filled with inspiring moments, thanks to the dedication and hard work of our amazing supporters. We’re thrilled to share that a record number of 26,000 roses were wrapped, bouquets sold and virtual roses planted. We’re thrilled to share that 65 Roses Day 2025 was a record-breaking success – raising over […]

Our CF Mums’ Group is an online playgroup for parents of pre-school aged children with CF (aged 0-4). It creates connection and friendships, and offers a safe space to talk about all things CF, parenting and beyond. Sessions are informal and are facilitated by our Services team. They run fortnightly on a Wednesday morning at […]

Goal Setting Program Do you want support with setting and achieving education and employment goals ? Our Goal Setting Program is perfect for individuals aged 16+ living with CF who are seeking assistance and financial support to achieve goals for the future. Your goal may be related to either Study & Education or Employment & […]

At its March 2025 meeting, the Pharmaceutical Benefits Advisory Committee (PBAC) reviewed two proposed extensions to existing cystic fibrosis treatments. Both have been recommended for listing: Trikafta: Proposed Extension to include children aged 2 years and older with a responsive CFTR gene mutation. This recommendation has the potential to give 45 children access to a CFTR modulator […]