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The Casaurina Cougars, a Darwin based Rugby club, raised awareness for cystic fibrosis (CF) at this year’s international Hottest 7’s event held in late January. They named themselves the ‘Cystic Fibrosis Cougars’ for the competition and raised $5,360.20 for Cystic Fibrosis WA by organising special 65 Roses Challenge Jersey’s and hosting a dinner. The club […]
A free downloadable handbook to help you get the most our of your fundraiser for Cystic Fibrosis WA.
2018 George Jones Family Foundation Cystic Fibrosis Golf Classic Cystic Fibrosis WA is delighted to invite you to be a part of the annual George Jones Family Foundation Cystic Fibrosis Golf Classic, held at the prestigious Lake Karrinyup Country Club on Friday 26 October 2018. Register a team now for a wonderful day out with […]
In Australia, we woke to the news this morning that the U.S. Food and Drug Administration (FDA) in the USA (the equivalent of our Therapeutic Goods Adminstration or TGA in Australia) had approved the tezacaftor/ivacaftor combination drug Symdeko. This is a drug that improves the function of the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) protein […]
A pill box produced by a young man in the WA CF Community. Suits Creon 10,000 and 25,000.