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While Vertex and the government squabble over the price of the ORKAMBI, the CF community is left playing an anxious waiting game Grey skies and a little rain couldn’t dampen the spirits of around 100 protesters marching on the offices of Vertex Pharmaceuticals, demanding that they negotiate in good faith with the Government to get […]
Western Australians Isobel Donaldson (12) and her sister Ruby (10), live with cystic fibrosis (CF). They and their parents are now waiting anxiously for the government to strike a deal with Vertex Pharmaceuticals for access to a lifesaving drug called ORKAMBI® on the eve of 65 Roses month. It’s official … ORKAMBI® is back on […]
Support Cystic Fibrosis WA and do you bit for the environment with our new double-walled reusable glass coffee cup. Glass construction with silicone handle and lid. BPA Free.
“When I was born with cystic fibrosis my life expectancy was just 10 years” Like many kids with cystic fibrosis, young Kate spent her childhood in and out of hospital. She had multiple hospital visits due to lung infections as well as emergency surgery for a blocked bowel. Each morning before school, Kate’s daily routine […]
A pack of 3 rose hair ties (mixed colours).
Vertex Pharmaceuticals has launched the first Phase 3 clinical trial investigating the triple combination therapy of VX-659, tezacaftor (VX-661), and Kalydeco (ivacaftor) in cystic fibrosis (CF) patients with one F508del mutation and one minimal function mutation in the CFTR gene, which is defective in CF patients. This triple combination trial is enrolling 360 CF patients ages 12 or older with one F508del mutation and one minimal function […]
65 Roses Day is coming soon! Here’s how you can help us paint WA with roses to support people living with cystic fibrosis. Enter your details and rose order below, no pre-payment required! Sell your roses in your workplace, school or community centre on 65 Roses Day, Friday 25 May 2018 Deposit the funds you […]