Community Support Worker Service CFWA have a Community Support Worker (CSW) service available in the metropolitan area to provide regular home visits to children and adults with CF. Our CSW program is funded by the Health Department of WA and offers assistance with airway clearance, nebulisation and exercise. Our CSWs receive regular training to provide […]

Alyftrek to be Listed on the PBS From 1 February 2026, Alyftrek will be listed on the Pharmaceutical Benefits Scheme (PBS), making this next-generation treatment more accessible to eligible Australians aged six and over. Alyftrek is the newest prescription medicine for people aged six years and older with CF with at least one responsive CFTR […]

Pill Swallowing Support Learning to swallow tablets can be difficult for children to learn but is important in helping them gain confidence and independence in managing their CF. Teaching pill swallowing works best when using a calm and positive approach. Every child learns at a different pace, so patience and positive reinforcement are important. Our […]

Jonah’s Pill Swallowing Journey Jonah is just about to turn seven and lives with CF, which means taking daily medication is essential for him to stay well. Swallowing tablets had become a real barrier, no matter how many approaches his mum tried, the pills wouldn’t go down, and without them he couldn’t stay on the […]

Sibs & Kids’ Day Out 2026 Save the date for the 2026 Sibs & Kids’ Day Out! This fun connection and respite event is for young carers aged 7 to 16, with a sibling or parent with CF. When: Tuesday 14 April, 2026 (week 1 of school holidays) Where: Flip Out Bibra Lake (7 Sobek […]

Looking After Mental Wellbeing Mental health and emotional wellbeing are deeply connected to how we live with CF, and they often shift in new ways as our physical health and treatments improve. While modulators can ease the physical load, they don’t automatically make life feel “easier”. For many people, new challenges appear once survival is […]

Parents with a child with CF and neurodivergent needs are welcome to join this support group. This group meets face to face once a term. Our first scheduled meeting for 2026 is 18th March at 10am. Venue TBD. For more information or to register your interest, please contact connect@cfwa.org.au