Grandparents’ Morning Tea Grandparents are invited to join us for our annual Grandparents’ Morning Tea. A relaxed morning tea to connect with other grandparents in the community and enjoy some Christmas crafts. 📅 Friday November 13 ⏰ 10am-12pm 📍 The Niche Building, 11 Aberdare Road, Nedlands Please RSVP to services@cfwa.org.au or 6224 4100 by Monday […]

CF Adults Connect- Online Yoga We’re excited to be launching a new 5-week online yoga pilot program, designed especially for adults living with CF. Join from the comfort of your own home for a relaxed and supportive yoga session with Lily, with a focus on gentle movement, stretching and taking some time out for yourself. […]

Starting School with CF Information Session Is your child starting kindy/pre-primary or daycare in 2027? The join us for our online Starting School Workshop. When: Wednesday November 11, 2026Time: 7:30pmWhere: Online This workshop is here to help parents and carers feel prepared and confident for this exciting next step. We’ll chat through what CF management […]

Koah- Starting School with CF When Koah was getting ready to start school, his mum Brittany, was excited for him, but also nervous about how his CF would be managed once he was in someone else’s care. Would they recognise his needs when, on the outside, he looked like any other energetic five-year-old? Brittany shares […]

Modulators for Infants CFTR modulators are not routinely available for babies, with most being accessible to children aged 6 years and older. Currently Kalydeco is the only modulator for younger babies, being available to eligible babies aged 1 month and older, while Orkambi is available to eligible babies from 12 months of age. Both need […]

Everyone with cystic fibrosis deserves adequate and safe care The adult cystic fibrosis (CF) clinic at Sir Charles Gairdner Hospital is over 50 years old, and is not fit for purpose. Sign the petition now to call on the WA Government to commit to a clear plan, funding and timeframe to refurbish or replace the […]

Starting School With CF Starting school is a milestone for any child, but for families living with CF it can come with additional challenges and concerns. This was certainly the case when Darcy was preparing to start school. Mum Susan wondered how her health needs would be managed in a busy classroom and how she […]