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The team has been busy travelling to share our book; communities in Kalgoorlie, Carnarvon, Geraldton, Wheatbelt and even as far as the Gibson desert have received copies! This year we have attended health embassy events, KindiLink sessions, playgroups and the Karijini food and cultural festival in the Pilbara and our next 6 months we are […]
We’re proud to launch our new Strategic Plan for the next three years, including our new vision – “Thriving individuals, families and communities”. Our new vision is a change from our past vision of “lives unaffected by CF”. We’ve reflected that our purpose as an organisation is to improve the lives of people and communities impacted […]
Save the date for our upcoming Parents’ Dinner & Research presentation on Saturday October 12 at The Balmoral Hotel, Vic Park. Parents and other carers are invited to join us for dinner and a presentation from Telethon Kids Institute researchers on the latest advancements in CF research. This event will be held during National Carers […]
Do you want support with setting and achieving personal goals? Our new Goal Setting Program is perfect for individuals with CF aged 13+ who are seeking guidance and assistance to stay on track and achieve goals for the future. Goals may be related to: This program includes individual sessions with our social worker to keep […]
Emotional Regulation Workshop Join us for a 2 hour online workshop for parents and carers which will provide guidance and strategies to help families regulate emotions effectively. The session will be hosted by Cathryn Bryant, an Education Learning Support Coordinator. When: Wednesday 21 August, 2024 Time: 9-11am Where: Online (RSVP to receive the link) RSVP: […]
Young carers aged 8 to 16 years are invited to join us for our 2024 Sibs and Kids’ Camp. This includes children with a sibling or parent living with CF. When: 30 September to 2 October, 2024 Where: Ern Halliday Recreation Camp Register: Registrations are open until 30 August. Click here to register. Children attending […]
Starting from 1 June 2024, Kalydeco (ivacaftor) will be available on the Pharmaceutical Benefits Scheme (PBS) for patients aged 4 months and older with certain CFTR mutations. This is a major step forward for the cystic fibrosis community in Australia! Who’s Eligible? With this reimbursement, approximately 95 people with cystic fibrosis will have access to […]