ORKAMBI Access 1 October 2018 Greg Hunt MP has announced that ORKAMBI (lumacaftor/ivacaftor), the first medicine to treat the underlying cause of cystic fibrosis in people with two copies of the F508del mutation, will be made available on the Pharmaceutical Benefits Scheme (PBS) from 1 October. Additionally, immediate compassionate access will be granted to certain […]

PCH Orkambi Roll-out The CF team at Perth Children’s Hospital have provided us with the following statement regarding the rollout of Orkambi: Dear CF families, Many of you will be aware that the Pharmaceutical Benefits Advisory Committee has approved access to Orkambi (ivacaftor/lumacaftor) for CF patients six years and over who are homozygous for (have […]

2018 Siblings & Offspring Camp The CFWA Siblings’ and Offspring Camp is coming soon! This camp is FREE for all participants thanks to generous support from Mazda Foundation. Date: 2-4 October (2nd week of school holidays) Location: Camp Kulin Registration: Online here Along with the Kulin Camp leaders there will be four Cystic Fibrosis WA […]

WA families rejoice the approval of a lifesaving drug Melissa Gibson is cheering very loudly. Today Melissa and husband Justin are celebrating the Pharmaceutical Benefits Advisory Committee (PBAC) much awaited announcement that a deal with Vertex Pharmaceuticals for access to a life-saving drug called Orkambi® for son Toby has finally been achieved. For Toby, who […]

Our Promise to You   For over 40 years, Cystic Fibrosis WA (CFWA) has been entrusted with providing essential support services and education to people living with cystic fibrosis (CF), their carers and health professionals.   In 2017 we delivered over 5,400 home care support visits to people with CF and our educational resources were […]

B&C FINANCE – Helping You Help Cystic Fibrosis WA For Michael Saunders, Director of B&C Finance, a conversation with Cystic Fibrosis WA’s (CFWA) Ric Reyerson made a connection that continues to grow. B&C Finance have been CFWA supporters for nearly two years through a referral commission program. We had a chat with Michael on 65 […]

Fundraising from your office reception or shop counter Do you work in a business with good customer foot traffic? We have a range of easy fundraisers available that will help us spread valuable awareness and raise funds for people living with cystic fibrosis, all from your shop counter or reception desk! Collection Tins Take a […]