At its March 2025 meeting, the Pharmaceutical Benefits Advisory Committee (PBAC) reviewed two proposed extensions to existing cystic fibrosis treatments. Both have been recommended for listing: Trikafta: Proposed Extension to include children aged 2 years and older with a responsive CFTR gene mutation. This recommendation has the potential to give 45 children access to a CFTR modulator […]

We recently headed to Bunbury as part of the BINAR Health Embassy Basketball Event, and what an incredible day it was! The event brought together community, culture, sport, and health in a powerful way, and we were proud to be part of it. The LungSmart team connected with Aboriginal families and young people to share […]

Danny McNally and Mike Cahill of CrossFit SHP have once again rallied their community to take on the Murph Challenge in support of people living with cystic fibrosis. Held at their gym in Wangara on 29 March, this year’s fundraiser was a true test of mental and physical endurance – with participants completing a 1.6km run, […]

For many children (and even teens and adults) the fear around separating from a parent or loved one can be distressing. For the children with CF and their siblings, this separation can be unavoidable and can add additional stress to already challenging times. If you have a child who is struggling with separation anxiety we […]

The LungSmart Team attended the Child Australia Childhood and Development Conference, which proved to be a valuable networking opportunity. It allowed us to connect with industry professionals, share knowledge. Through these connections, we were able to explore innovative strategies for supporting children with chronic respiratory conditions. Additionally, the conference provided a platform for us to […]

We’re continuing our partnership with UWA. This year, two, third-year medical Rural Clinical Students (RCS) will be based in Geraldton. They will build on the fantastic work done by previous students and continue fostering relationships in the Mid-West region. If you’re in the area, please reach out—the students would love to share the wet cough […]

In 2025 we are excited to continue to be a part of the BINAR Health Embassy events, which provide us with a unique opportunity to connect with Aboriginal families. Through these events, we can share the chronic wet cough health message and resources in a space where community members are already actively engaged. In January […]