Having cystic fibrosis (CF), or caring for someone with CF, can bring up a whole range of different emotions and feelings. It’s normal to experience anxiety, and in some cases depression, when you or your child are unwell or undergoing procedures. If these feelings persist, and you would like someone to talk to, we offer general support for families, children and adults with CF.
Support We Offer
We offer the following programs to support people with CF:
- Counselling: We offer face-to-face counselling in a location suitable to you, or via Zoom or phone if regional. We have an adult social worker Kathryn (email@example.com) and a youth social worker Haylee (firstname.lastname@example.org) who can provide support to both people with CF and their carers.
- Goal Setting: Our Community Nurse Sharon (email@example.com) can help set some goals with you to keep you motivated.
- E-Mentoring: Our e-mentoring program links up adults with CF who can provide structured guidance and support.
For children and their carers, Perth Children’s Hospital (PCH) provide psychological and social work support. They also have a program, KKind (Keeping Kids in No Distress) which provides support for children to minimise traumatic stress in hospital. Visit the Child and Adolescent Health Service for more information.
Sir Charles Gairdner Hospital and Fiona Stanley Hospital have social workers that may be able to assist with general counselling, health coaching and support. The hospital may not have psychology or psychiatry available, however the social worker is able to make a referral for you to an external provider.
Mental Health Gap Funding
Mental Health Care Plans can be accessed through your GP, which will now entitle you to access up to 20 Medicare subsidised sessions with a mental health professional each calendar year. CFWA’s gap funding of up to $50 per session will assist with any payment not covered by Medicare.
- Adults with CF 16+
- Parents, carers, siblings and offspring of people with CF
External Support and Help
Some agencies provide free information, advice and counselling, however, if you wanted to seek specific counselling you could go to your GP for a mental health plan.
- Cystic Fibrosis Australia – have a range of resources on depression, anxiety and resilience.
- Beyond Blue – Beyond Blue promotes good mental health, tackles stigma and discrimination and provides support and information on anxiety, depression and suicide.
- Youth Beyond Blue – Dedicated site for youth. Information, resources and support for young people dealing with depression and/or anxiety.
- Black Dog Institute – The Black Dog Institute is dedicated to improving the lives of people affected by mood disorders through high quality translational research, clinical expertise and education programs.
- Dr Yes – A medical program run by the Australian Medical Association, with resources to find youth Friendly doctors in metro and country areas.
- Headspace – Headspace helps young people who are going through a tough time. If you are aged 12-25 you can get health advice, support and other information from more than 70 centres around Australia. headspace can help with general health, mental health and counselling, education, employment and alcohol and other drug services.
- E-Headspace – E-headspace is a confidential, free and secure space where young people 12 – 25 or their family can chat, email or speak on the phone with a qualified youth mental health professional.
- Kids Help Line – A national 24hour phone counselling service for children. Their site includes counselling statistics by sex and subject, and information sheets on topics such as suicide, bullying, domestic violence, homelessness, mental health and relationships.
- Lifeline – A national charity providing all Australians with access to 24-hour crisis support and suicide prevention services.
- ReachOut – An anonymous way to get help and access to information and support services 24/7, explore issues, and discover how other people have got through tough times.
Links in an Emergency
Dial 000 for an ambulance for immediate assistance in the event of an attempted suicide.
If a person is highly distressed and feeling unsafe or thinks they are a risk to themselves, head to a public emergency department where there are doctors, nurses and social workers available 24 hours a day.
In Perth, the emergency departments are located:
- Perth Children’s Hospital (16 years or younger): Hospital Avenue, Nedlands (08) 6456 2222
- Royal Perth Hospital: Wellington Street, Perth (08) 9224 2244
- Sir Charles Gardiner Hospital: Hospital Avenue, Nedlands (08) 6457 3333
- Fiona Stanley Hospital: 102-118 Murdoch Drive, Murdoch (08) 6152 2222
- Joondalup Hospital: Shenton Avenue, Joondalup (08) 9400 9400
- Armadale Health Service: 3056 Albany Highway, Armadale (08) 9391 2000
- Rockingham/Kwinana District Hospital: Elanora Drive, Cooloongup (08) 9599 4000
- John of God Midland Public Hospital: 1 Clayton Street, Midland (08) 9462 4000
If a person is highly distressed and feeling unsafe or thinks they are a risk to themselves but refuses to go to a public emergency department, you can call:
- Mental Health Emergency Response (MHERL) Line – Free call 1300 555 788 (metro) or 1800 676 822 (regional). This service consists of professionals who can come to a person’s home for emergency assessment. Calls during normal business hours will be referred to the local Mental Health Service.
- Suicide Call Back Service – 1300 659 467. The Suicide Call Back Service is a 24-hour, nationwide service that provides telephone and online counselling to people 15 years and over who are suicidal, caring for someone who is suicidal, bereaved by suicide, and health professionals supporting people affected by suicide.
- Rurallink – In regional areas please contact Rurallink on 1800 552 002. Rurallink operates from 4.30 pm to 8.30 am Monday to Friday, and 24 hours on Saturdays, Sundays and public holidays. During business hours, the emergency number is patched through to a local service.
- Legal Aid – Legal Aid WA can offer legal advice on a range of issues specific to youth and may also be able to offer assistance with representation on criminal matters. Initial contact can be made by calling their information line on 1300 650 579.
- Youth Legal Services – A community legal centre providing services to young people under the age 25.
- Law Stuff – The National Children’s and Youth Law Centre – select Western Australia for the right legal information.
For more information, support or counselling, contact our Social Worker via email (firstname.lastname@example.org) or phone 08 6457 7333.