Living with cystic fibrosis (CF) can raise many challenges. CFWA is here to support you and your family with a range of services as outlined below.

Please get in touch with our Services team via email services@cfwa.org.au or on 08 6224 4100 if you would like to know more about our services and support.

Airway Clearance

Airway clearance is essential to remove thick, sticky mucus from the lungs to prevent lung damage. It is important to get into a good habit with physio so that it becomes part of your daily routine, and should be combined with exercise to enhance mucus clearance. There are many different airway clearance techniques, and your hospital physio will develop an individualised program that is best for you.

Community Support Worker Program

We can provide you with support with airway clearance through our Community Support Worker (CSW) service. Our CSWs offer support for airway clearance, nebulisation, exercise, light home duties and respite.

Useful External Resources


Exercise is extremely important for people with CF, with improvements in lung function, strength, fitness levels and overall quality of life.

Our CFFit resources can assist you to exercise safely at home or the gym. The booklets contain CF specific exercise tips and information to help you. The resources are also useful to educate your personal trainer or fitness coach about CF and exercise.

Exercise Support

  • Adult Activity Subsidy: This is available to adults with CF to assist in covering the fees of gym memberships/personal trainers.
  • Community Support Workers can assist with goal setting, motivation and assistance with exercise, with a program specifically developed for them by their hospital care team.

Useful External Resources

  • Beam: Beam offers on-demand and live exercise classes led by specialist physiotherapists and trainers who are trained in, or live with, CF.
  • CFYogi: A free virtual yoga studio for the CF community.


Diet plays a very important role in the management of your CF. In fact, nutrition is so important that a healthy body weight can be linked to better lung function.

We have a new webpage all about Nutrition for Adults with CF.

Emotional Wellbeing

People with CF are at a greater risk of experiencing mental health issues, including anxiety and depression, due to the ups and downs of living with a chronic illness. Triggers can include new diagnoses, health changes, difficulty maintaining normal activities such as work or relationships, poor body image or lung transplantation. Anxiety and depression can affect how you manage and cope with CF, so it is important to look after your mental health and seek help when needed.

Some ways to look after your mental health include:

  • Have a strong support system and ask for help when you need it
  • Keep on top of treatments and medications
  • Exercise regularly
  • Practice mindfulness
  • Practice positive thinking and gratitude
  • Eat well
  • Get plenty of sleep

Building a community of support networks around you, such as family, friends and community groups, is so important to ensure you have both physical and emotional supports to navigate the ups and down of life together.

Counselling and Mental Health Gap Funding

If you need further support our psychosocial team are available to provide a range of psychosocial support including couselling and crisis support.

If you wish to access more formal support, a mental health care plan can be accessed through your GP which will entitle you to access up to 20 Medicare subsidised sessions with a mental health professional each calendar year.  We offer a Mental Health Gap subsidy to assist with any payment not covered by Medicare. For more information, click on the Mental Health Care Plan & Rebates factsheet below.

Useful External Resources

Medications & Procedures

Having CF means you are likely to be on lots of different medications. Common medications include enzymes, bronchodilators, mucolytics, antibiotics, anti-inflammatories, salt and vitamins. These medications may be given orally, intravenously, inhaled through a nebuliser or other inhalation device. For more detailed information about common medications check out our factsheets:

There may also be times where you will need to undergo certain procedures. We have the following factsheets available on some common procedures:

Useful External Resources

Comorbidities & Complications

Most adults with CF will experience a range of CF-related comorbidities and complications. Here is some information on some of the most common ones:

Useful External Resources

Infection Prevention & Control

People living with CF are at greater risk of getting lung infections than those who don’t have the condition. That’s because the thick, sticky mucus builds up in the lungs, allowing germs to thrive and multiply. Good hand hygiene, avoiding people who are unwell and others with CF can help minimise the change of picking up germs.

See our factsheets for detailed information about how germs can affect those with CF and how to minimise risk.

Useful External Resources

Hospital Support

CFWA can offer the following hospital support services:

Hospital Travel & Parking Subsidy

We can offer financial assistance for regional members to help cover the costs associated with travel and parking for hospital and clinic appointments. Click here for more information and to apply.

Hospital Visits & Food Bag

CFWA can provide inpatient visits during an admission to offer support and discuss services. Contact our services team on services@cfwa.org.au to request a visit.

We can also provide food bags during admissions. To request a bag, click here and select the food items you wish.

Fertility & Parenting with CF


Fertility and reproduction are common areas of interest amongst adults with CF, and pregnancy and parenthood have become exciting realities for many.

If you are interested in starting a family, speak to your hospital care team as they can provide lots of information and begin preparing you for this journey. It is important to start these conversations early as it can be a long process for some individuals. CFWA can also link you up with other adults who have been through the process.

The following fact sheets provide more information about female and male fertility and CF.

New Parent Support

We offer structured in-home support for adults with CF who are expecting a child or already have children. These services may include cleaning and respite. Contact services@cfwa.org.au for more information.

Starting a Family if you Have CF (CF UK Trust)

Useful External Resources


Studying or finding and keeping a job that is flexible enough to fit in around CF can be challenging. You need to consider treatment time, hospitalisations, clinic appointments and fitness levels, plus how this will fit in with your job and employer.

It is important that you are aware of both your rights and responsibilities as an employee. As a general rule of thumb, you don’t need to tell your employer that you have CF, unless it is an occupational health and safety risk, and might hinder your ability to do your job. Disclosure can often make your life easier in the long run, as it can help explain absences or problems relating to your work performance. If you are denied employment due to having CF, you might have a discrimination claim.

CFWA have a CF in the Workplace brochure which may be helpful for providing employers with basic CF information.

Useful External Resources


Travel takes planning, however for those with CF, it can involve extra organisation to ensure the trip goes smoothly. Hear from some CF adults about how they plan for travel and how having CF doesn’t stop them.

Have a read of our factsheet for more information on reciprocal health care agreements, travel insurance, health preparation, medications, flights, eating, drinking and cross-infection and links to useful resources.

Useful External Resources

Read more
Adult Stories
Online Exercise Sessions for Adults with CF

Have you heard about our free online group exercise sessions for adults with CF? Michael is a professional trainer who also has CF and has…

Adult Stories
Ross’ Story

Ross’ Story Ross has kindly shared his experiences living with CF and we are really grateful for his advocacy and support in our community. My…

Adult Stories
Personal Reflections- Sally

Thank you for agreeing to share some of your personal reflections with us Sally. Can you please tell us a little bit about your background?…

Adult Stories
Ask Mel…About having a family and living with CF

Hi Mel, can you please tell us a bit about you? Hi, my name is Mel. I’m a little pocket-rocket with so much energy and…

Adult Stories
Life Changing Modulators- Mitch’s Story

We share some stories from WA members on the life-changing effects of the new modulator treatments. Mitch Messer recently celebrated turning 60. He also celebrated…

Adult Stories
Life Changing Modulators- Mel’s Story

We share some stories from WA members on the life-changing effects of the new modulator treatments. This drug is incredible. Having a degenerative lung disease…

2024 © Cystic Fibrosis Western Australia Privacy Policy | Refund & Delivery Policy | ABN: 19 156 339 182