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Hike for Health Larapinta 2026

Trek through Australia’s beautiful Red Centre on the rugged Larapinta trail to improve the lives of people and communities impacted by cystic fibrosis.

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What's The Latest?
News
Hospital Transition Workshop Q&As
In September 2025 we held an online Hospital Transition Workshop with health professionals from PCH and SCGH. These were some of the questions asked throughout...
Grandparents’ Morning Tea
Grandparents are invited to join us for a relaxed morning tea to meet other grandparents and the CFWA services team. When: Friday November 21, 10am-midday...
Kalydeco Available for Babies from 1 Month
From 1 September 2025, access to KALYDECO (ivacaftor) has been expanded under the Pharmaceutical Benefits Scheme (PBS), making this life-changing treatment available to patients aged...
Alyftrek Deferred at August Meeting
On August 22 it was announced that the Pharmaceutical Benefits Advisory Committee (PBAC) deferred their recommendation on Alyftrek as the Therapeutic Goods Administration (TGA) approval...
Events
30 Sept 2025
A 2 night camp for young carers aged 8-16 with a sibling or parent with CF.
18 Oct 2025
A social dinner for parents to celebrate National Carers Week.
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