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Hike for Health Larapinta 2026

Trek through Australia’s beautiful Red Centre on the rugged Larapinta trail to improve the lives of people and communities impacted by cystic fibrosis.

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What's The Latest?
News
Kalydeco Available for Babies from 1 Month
From 1 September 2025, access to KALYDECO (ivacaftor) has been expanded under the Pharmaceutical Benefits Scheme (PBS), making this life-changing treatment available to patients aged...
Alyftrek Deferred at August Meeting
On August 22 it was announced that the Pharmaceutical Benefits Advisory Committee (PBAC) deferred their recommendation on Alyftrek as the Therapeutic Goods Administration (TGA) approval...
Karrawang Community Playgroup 
Karrawang Community Playgroup The LungSmart team was invited to a local playgroup in the Kurrawang community to share lung health messages through storytelling and engaging...
BINAR Health Embassy- Perth & Derby
The LungSmart team took part in the Binar Health Embassy in Derby and Perth, using basketball to share messages about chronic wet cough.  In Derby,...
Events
30 Sept 2025
A 2 night camp for young carers aged 8-16 with a sibling or parent with CF.
18 Oct 2025
A social dinner for parents to celebrate National Carers Week.
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