Cystic Fibrosis WA Subsidies
Cystic Fibrosis WA (CFWA) currently provide the following annual subsidies
2019 Australasian CF Conference Subsidies
The 13th Australasian CF Conference, being held in Perth, brings together scientists, clinicians and allied health professionals from the global CF Community.
The Lay Conference provides an opportunity for our members to hear about the latest advances in CF research, care and drug development, as well as providing a forum to discuss new ideas and visions for the future.
Information about the Lay event can be found found here.
To register for the conference click here.
Regional Parents and Carers Conference Subsidy
A generous subsidy is available for parents and carers from regional WA attending the Lay Conference. This subsidy is made possible with support from Telethon. The subsidy provides a considerable contribution towards the cost of conference registration, attendance at the Lay Conference Dinner and accommodation.
To find out more information about this fantastic offer, please contact Paula on firstname.lastname@example.org or 08 6457 7333.
Metro Attendant Conference Subsidy
Funded through CFWA fundraising, this subsidy is open to all parents and carers living in Metro Perth.
1) $150 towards the cost of registration to the CF Conference (current registration fee is $270)
2) $200 towards the cost of registration and attendance at the lay Dinner (current total cost of registration and dinner ticket $335)
To apply for this subsidy, please complete the subsidy application form link here (ensure you have copies of your receipts to hand).
For further information please contact Paula on email@example.com or 08 6457 7333.
Activity and Exercise Subsidies
Children’s Activity Subsidy
This subsidy is designed to encourage your child to participate in sporting activities in the community, examples include: dancing lessons, swimming lessons or footy club registration. It is an annual $200 subsidy.
Prior to applying for the CFWA Activity Subsidy please check your child’s eligibility with Kidsport. If you are eligible, CFWA can contribute an additional $50.
To claim the CFWA Children’s Activity Subsidy click here.
Adult Personal Training, Gym and Activity Subsidy
We are excited to introduce a new subsidy for adults with CF across WA, to help encourage and increase physical activity.
Physical activity subsidies are available for adults with CF across the whole of WA with a gym or personal trainer of your choice. Subsidies are immediately available up to $40 per week or $160 per month, initially for a period of 12 weeks. We recommend you purchase either a 3-month membership or multi entry pass up to $480
Prior to commencing new activities, we highly recommend:
• Reading the three CF Fit booklets at www.cfwa.org.au/what-we-offer/resources
• Seek advice and an exercise plan from CF hospital physio
• Locate fully qualified gym or qualified class instructor/personal trainer who understands CF or is open to learning about CF. CFWA are also available to provide education.
To be eligible for the subsidy, you must:
• Ensure the enterprise you choose is a registered business or sole proprietor with a legitimate ABN. You can check the ABN by visiting ABN Lookup here.
• Provide a tax receipt (showing ABN and full payment details), receipt to be uploaded onto our online subsidy request form here.
• Complete a pre and post questionnaire about your fitness levels and exercise habits. This program will be continuously reviewed, and availability will be dependent on funding. Please contact Kathryn to discuss funding availability prior to applying.
CFWA Travel Subsidies
Children’s Regional Travel Subsidy
Families of children attending Perth Children’s Hospital (PCH) clinic appointments or hospital admissions can receive between $50-$150. This subsidy is proudly sponsored by Telethon. Click here to access this subsidy.
Sibling and Offspring Camp Subsidy
Travel reimbursement to assist regional children in attending the annual sibling camp. This subsidy is proudly sponsored by Telethon. Click here to access this subsidy.
Adult Regional Travel Subsidy
Funded through CFWA fundraising, our Adult Regional Travel Subsidy provides financial support to adults living in regional WA who are attending clinic appointments or medical admissions at Sir Charles Gairdner Hospital (SCGH) or Fiona Stanley Hospital (FSH) . The subsidy can provide between $50-$100.
To apply for the Adult Regional Travel Subsidy please click here.
*Please note that due to funding all our subsidies may be subject to change.
Funeral Subsidy: A funeral subsidy of $500 is available to families in need. For more information and to access this subsidy please click here.
For further information about our subsidies contact our Social Worker via email (firstname.lastname@example.org) or phone 08 6457 7333.
Cystic Fibrosis WA Equipment
CFWA has a small range of equipment available for members at no charge. Available equipment varies at any given time, as it is dependent on grant funding. Equipment is issued in consultation with Perth Children’s Hospital (PCH), Sir Charles Gairdner Hospital (SCGH) and Fiona Stanley Hospital (FSH) where appropriate. Thanks to generous support from Aurizon, PEACH, Rotary, Lions, community fundraising and Telethon we currently have the following equipment available:
InnoSpire Go Vibrating Mesh Nebuliser: portable battery-operated vibrating mesh nebuliser funded by Telethon and community fundraising for children with CF.
Personal Training Equipment: a variety of personal training equipment is available thanks to PEACH to support CFWA’s PT program.
Trampolines: Thanks to Aurizon we have a number of trampolines to gift to children between the ages of 2 and 10 years who have not received a trampoline from us in the past.
PariBOY Nebuliser: a small number of air compressor nebulisers are available for children with CF on referral from PCH.
Oxygen Concentrator: CFWA have one oxygen concentrator available for loan on referral from senior physiotherapist at SCGH, donated by Rotary and Lions.
If you would like more information or to thank our generous supporters please contact our Physiotherapist via email (email@example.com) or phone 08 6457 7333.
Centrelink provide a broad range of allowances which you may be eligible to access:
- Carer Allowance: When a child is born with CF the parent/s automatically become eligible for the carers allowance, if you are an Australian resident. This also entitles you to a health care card. When your child turns 16 you will still be eligible if they are continuing studying or doing an apprenticeship. You may also be eligible for this allowance if you are caring for an adult with CF.
- Carers Payment: An income tested benefit, the recipient must reach a qualifying score to determine eligibility.
- Carer Adjustment Payment: If there are exceptional circumstances and extreme hardship you may be eligible for the Carer Adjustment Payment which allows a one-off payment of up to $10,000. Families with a child who has CF will not automatically qualify, there must be other difficult adjustment issues.
- Disability Support Pension (DSP): You need to be over 16 years and over, and not able to work more than 15 hours per week. To assess your eligibility for DSP, a report from your treating doctor or specialist on your disability, injury or illness is required.
- Sickness Allowance: Assists if you are employed, including self-employment, and you are temporarily unable to work because of a medical condition.
- Essential Medical Equipment Payment: An annual payment which assists with extra costs associated with essential medical equipment such as home ventilators, oxygen concentrator and nebulisers.
- Pharmaceutical Benefit Scheme Safety Net (PBS): The PBS Safety Net provides discounted prescriptions once you have reached the threshold.
Employment and Study
- Mobility Allowance: Assists people with a chronic health condition who are working and cannot use public transport without substantial assistance or concerns about infection control. It’s not income or asset
- Newstart Allowance (21 years over): If you are unemployed, Newstart Allowance provides financial support while you are looking for work.
- Youth Allowance (16 years plus)- can assist if you are a young person who is studying, undertaking training or an Australian Apprenticeship, looking for work, or if you are sick.
- Special Benefit- helps if you are in severe financial need due to circumstances outside your control and you cannot receive any other Centrelink pension or benefit.
- Austudy- provides financial help if you are aged 25 years or more and are studying or undertaking an Australian Apprenticeship full-time.
All information on Centrelink allowances, benefits and concession cards can be found on their website.
- Centrelink: Centrelink has two main types of concession cards, Health Care Card and the Pensioner Concession Card. Concessions may include a reduction on many bills, including medical bills and pharmaceuticals.
- Companion Card: Issued by National Disability Services to people with a significant permanent disability who require a care support person or a companion.
- Student Edge Card: Provides discounts for retail and online products. They also have lots of information on budgeting, managing finances and getting a job.
- Transperth Concession Smart Rider: A concession card which can be obtained by anyone who holds a valid concession entitlement. Concession cardholders are also entitled to free travel during certain times.
- ACROD Parking Program: To be eligible you must have a severe mobility impairment where walking more than 50m causes your physical condition to deteriorate and close proximity parking is required.
- Taxi Users’ Subsidy Scheme (TUSS): TUSS provides taxi travel at a reduced rate for people who have a severe permanent disability that will always prevent them using a conventional public transport bus service.
- Centrelink Rent Assistance: Available to people who receive Centrelink benefits, including those who receive more than the base rate of family tax benefit (Part A), and pay private rent above minimum thresholds.
- Affordable Housing Options: Options to help Western Australians into affordable housing.
Continence Financial Support
Most people with incontinence use continence products such as pads, catheters or bedding protection to manage their condition. Some people require these products on a long-term basis, which can become very expensive. For more information visit the Continence Foundation of Australia website or contact a continence nurse advisor at the National Continence Helpline on 1800 33 00 66.
Hardship Utility Grant Scheme (HUGS)
HUGS are run by WA’s Department for Child Protection. HUGS are a State Government scheme which provides financial assistance to help people with financial difficulties pay their water, gas and electricity bills so their supply is not cut off. For more information visit the HUGS website.
If you are in possession of a current Health Care Card, you are eligible for emergency and general dental care at the basic rate of subsidy. For more information visit the Dental Health Services website or call 08 9313 0555.
Community Aid Agencies
There are a number of aid agencies available to assist with food, emergency accommodation, clothing, counselling and family support.
- Salvation Army Ph: 08 9260 9500
- St Vincent de Paul Society Ph: 1300 794 054
- The Australian Red Cross Ph:(08) 9225 8888 Freecall: 1800 810 710
- Anglicare WA Ph: (08) 9263 2000
Emergency Accommodation and Crisis Support
- Women’s Domestic Violence Helpline Ph: (08) 9223 1188 or 1800 007 339
- Men’s Domestic Violence Helpline Ph: (08) 9223 1199 or 1800 000 599
- Salvo Care Line Ph: (08) 9442 5777
- Crisis Care: 24 hour crisis information and counselling Ph: (08) 9223 1111 or 1800 199 008 (country callers)
- Carers Counselling Line Ph: 1800 007 332
- Lifeline Ph: 13 11 14
If you are aware of any other financial subsidies, please let us know by contacting our Services Manager via email (firstname.lastname@example.org) or on 08 6457 7333 so that we can advise our membership and support others.