Cystic Fibrosis WA Subsidies
Cystic Fibrosis WA (CFWA) currently provide the following annual subsidies:
- Patient Support Subsidy- A $200 subsidy towards medical or exercise equipment or sporting fees.
- Adult Regional Travel Subsidy- Adults attending Sir Charles Gairdner Hospital (SCGH) or Fiona Stanley Hospital (FSH) clinic appointments can receive $50-$100 per visit.
- Telethon Regional Travel Subsidy- Families of children attending Perth Children’s Hospital (PCH) clinic appointments can receive $50-$150 per visit. This subsidy is proudly sponsored by Telethon.
- Sibling and Offspring Camp Subsidy- Travel reimbursement to assist regional children in attending the annual sibling camp. This subsidy is proudly sponsored by Telethon.
- To access our subsidies click here.
*Please note that due to funding these subsidies may be subject to change.
Funeral Subsidy: A funeral subsidy of $500 is available to families in need. For more information and to access this subsidy please click here.
For further information about our subsidies contact our Social Worker via email (email@example.com) or phone 08 6457 7333.
Centrelink provide a broad range of allowances which you may be eligible to access:
- Carer Allowance: When a child is born with CF the parent/s automatically become eligible for the carers allowance, if you are an Australian resident. This also entitles you to a health care card. When your child turns 16 you will still be eligible if they are continuing studying or doing an apprenticeship. You may also be eligible for this allowance if you are caring for an adult with CF.
- Carers Payment: An income tested benefit, the recipient must reach a qualifying score to determine eligibility.
- Carer Adjustment Payment: If there are exceptional circumstances and extreme hardship you may be eligible for the Carer Adjustment Payment which allows a one-off payment of up to $10,000. Families with a child who has CF will not automatically qualify, there must be other difficult adjustment issues.
- Disability Support Pension (DSP): You need to be over 16 years and over, and not able to work more than 15 hours per week. To assess your eligibility for DSP, a report from your treating doctor or specialist on your disability, injury or illness is required.
- Sickness Allowance: Assists if you are employed, including self-employment, and you are temporarily unable to work because of a medical condition.
- Essential Medical Equipment Payment: An annual payment which assists with extra costs associated with essential medical equipment such as home ventilators, oxygen concentrator and nebulisers.
- Pharmaceutical Benefit Scheme Safety Net (PBS): The PBS Safety Net provides discounted prescriptions once you have reached the threshold.
Employment and Study
- Mobility Allowance: Assists people with a chronic health condition who are working and cannot use public transport without substantial assistance or concerns about infection control. It’s not income or asset
- Newstart Allowance (21 years over): If you are unemployed, Newstart Allowance provides financial support while you are looking for work.
- Youth Allowance (16 years plus)- can assist if you are a young person who is studying, undertaking training or an Australian Apprenticeship, looking for work, or if you are sick.
- Special Benefit- helps if you are in severe financial need due to circumstances outside your control and you cannot receive any other Centrelink pension or benefit.
- Austudy- provides financial help if you are aged 25 years or more and are studying or undertaking an Australian Apprenticeship full-time.
All information on Centrelink allowances, benefits and concession cards can be found on their website.
- Centrelink: Centrelink has two main types of concession cards, Health Care Card and the Pensioner Concession Card. Concessions may include a reduction on many bills, including medical bills and pharmaceuticals.
- Companion Card: Issued by National Disability Services to people with a significant permanent disability who require a care support person or a companion.
- Student Edge Card: Provides discounts for retail and online products. They also have lots of information on budgeting, managing finances and getting a job.
- Transperth Concession Smart Rider: A concession card which can be obtained by anyone who holds a valid concession entitlement. Concession cardholders are also entitled to free travel during certain times.
- ACROD Parking Program: To be eligible you must have a severe mobility impairment where walking more than 50m causes your physical condition to deteriorate and close proximity parking is required.
- Taxi Users’ Subsidy Scheme (TUSS): TUSS provides taxi travel at a reduced rate for people who have a severe permanent disability that will always prevent them using a conventional public transport bus service.
- Centrelink Rent Assistance: Available to people who receive Centrelink benefits, including those who receive more than the base rate of family tax benefit (Part A), and pay private rent above minimum thresholds.
- Affordable Housing Options: Options to help Western Australians into affordable housing.
Continence Financial Support
Most people with incontinence use continence products such as pads, catheters or bedding protection to manage their condition. Some people require these products on a long-term basis, which can become very expensive. For more information visit the Continence Foundation of Australia website or contact a continence nurse advisor at the National Continence Helpline on 1800 33 00 66.
Hardship Utility Grant Scheme (HUGS)
HUGS are run by WA’s Department for Child Protection. HUGS are a State Government scheme which provides financial assistance to help people with financial difficulties pay their water, gas and electricity bills so their supply is not cut off. For more information visit the HUGS website.
If you are in possession of a current Health Care Card, you are eligible for emergency and general dental care at the basic rate of subsidy. For more information visit the Dental Health Services website or call 08 9313 0555.
Community Aid Agencies
There are a number of aid agencies available to assist with food, emergency accommodation, clothing, counselling and family support.
- Salvation Army Ph: 08 9260 9500
- St Vincent de Paul Society Ph: 1300 794 054
- The Australian Red Cross Ph:(08) 9225 8888 Freecall: 1800 810 710
- Anglicare WA Ph: (08) 9263 2000
Emergency Accommodation and Crisis Support
- Women’s Domestic Violence Helpline Ph: (08) 9223 1188 or 1800 007 339
- Men’s Domestic Violence Helpline Ph: (08) 9223 1199 or 1800 000 599
- Salvo Care Line Ph: (08) 9442 5777
- Crisis Care: 24 hour crisis information and counselling Ph: (08) 9223 1111 or 1800 199 008 (country callers)
- Carers Counselling Line Ph: 1800 007 332
- Lifeline Ph: 13 11 14
If you are aware of any other financial subsidies, please let us know by contacting our Services Manager via email (firstname.lastname@example.org) or on 08 6457 7333 so that we can advise our membership and support others.
We have a range of equipment available for members. Equipment available at any given time varies, as it is dependent on grant funding. Equipment is issued in consultation with Perth Children’s Hospital (PCH), Sir Charles Gairdner Hospital (SCGH) and Fiona Stanley Hospital (FSH) where appropriate. Thanks to generous support from PEACH, Variety WA, Honda Foundation and Telethon we currently have the following equipment available:
Loan Aeroneb (young children only): short term loan (up to 4 weeks) of a portable, battery operated, vibrating mesh nebuliser for children referred by PCH who have increased nebulisation requirements.
Loan Eflow nebuliser (children only): short term loan (up to 4 weeks) of a portable, battery operated, vibrating mesh nebuliser for children referred by PCH who have increased nebulisation requirements.
Pari Boy SX nebuliser (children only): air compressor nebuliser for use with all medications including antibiotics, hypertonic saline and Pulmozyme.
Aeroneb (regional children only): portable battery-operated vibrating mesh nebuliser donated by Telethon in 2017 to all regional families.
If you currently have equipment that you are no longer using, please return it to us so we can use it for another family. If you would like more information on nebulisers please read our factsheet. For any further information or to thank our generous supporters please our Physiotherapist via email (email@example.com) or phone 08 6457 7333.