We hold a range of events throughout the year designed to support family members of those living with cystic fibrosis (CF) by providing respite and initiating the development of supportive relationships within the community.
Ladies’ High Tea
On the back of Mother’s Day, we hold our Ladies’ High Tea, celebrating all female carers of people with CF. A fun and fabulous afternoon of high tea, games, guest speakers and champagne!
Normally held in March each year, the Parent’s Retreat is a two-night getaway for parents of children with CF. The annual weekend is held in various locations around metro and outer metro Perth, and provides a weekend of respite, fun activities and initiates the development of important social support networks among parents.
Parents and Carer’s Dinner
This is an annual support dinner for parents with a child (of any age) with CF. It is usually held during Carers Week in October and provides a social setting to celebrate all the wonderful work carers do and offers an opportunity for parents and other carers to connect with each other.
Grandparent’s Morning Tea
A new annual event to support grandparents of child with CF. This event includes a social morning tea, educational component and the opportunity to meet other grandparents.
Sibling and Offspring Camp
Each year during the October school holidays, we hold a two-night camp for children, aged 8 – 16 years, with a sibling or parent with CF. The camp is a great opportunity for young people whose family lives are directly impacted by CF to connect with others in a similar situation. Our young carers also get the chance to experience new physical and challenging activities, learn more about their feelings toward CF and develop vital support networks.
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Sib’s Day Out
This event offers a fun day out for children and young people, aged 7 to 16, with a sibling or parent with CF. It provides an opportunity for this group of young carers to catch up in between our annual camp and strengthen bonds.
Post-Transplant Support Event
An annual event for individuals who have received a lung transplant, and their partners. It provides education around post-transplant health, the opportunity to connect with others who have been through the transplant journey and to share stories.
During outreach trips, we host social dinners to connect parents and carers with other families affected by CF in their community. It is also an opportunity to meet the CFWA team and discuss services and support we can offer. For more information on our outreach program, go to the Regional Support page.