CF Books
It’s great to see more mainstream books featuring characters living with CF, helping to raise awareness and spark important conversations in the wider community. These stories offer insight into some of the challenges faced by people with CF, while also celebrating their resilience, optimism, and individuality.
Each book presents a unique perspective – because every experience with CF is different. While these stories may not reflect your personal journey or capture the full spectrum of life with CF, they contribute to a broader understanding and appreciation of what it means to live with CF.
Book Title
Genre/age recommendation
Notes
Our Baby has 65 Roses by Eilis Moroney
Children’s books
A beautiful story of a little boy, his dog and his family as they learn and understand what is happening to his new baby sister who has been diagnosed with CF.
My CF Book by Michelle Bowers
Children’s books
Explores the everyday life of an infant with CF. The simple descriptions and inviting illustrations. You will join our main character as he introduces you to vitamins, enzymes, mucus, clinic visits and so much more!
My ABCF by CFWA
Children’s book
Follow our friends as they journey through the alphabet learning more about living with CF. From coughs to enzymes, to koala cuddles and nebulisers, this book will encourage conversations with your child about CF.
CF Can’t Stop Me by Megan Anastasio
Children’s book
Meet Colton, a brave and energetic kid who lives with CF, but he doesn’t let it slow him down! CF Can’t Stop Me! shows children that they can still dream big, laugh loud, and live life to the fullest, no matter what challenges they face.
Little Tourist: A CF Adventure by Alice Abou-Chakra
Children’s book
Alice has CF. Despite her illness, Alice has a dream to travel the world and find ways to participate in activities that can be more challenging for people with CF.
The Abilities in Me: Cystic Fibrosis by Gemma Keir
Children’s book
Explore the day in the life of a young girl with CF through bright, colourful illustrations and text. Perfect for teachers, parents and children alike, this book will help to raise awareness and teach children how to be supportive and be kind.
My ABCF at School by CFWA
Children’s book
Follow our friends as they journey through the alphabet learning more about CF. From coughs, to germs, to lunchboxes and medicine, this book will encourage conversations in the classroom about CF.
Do Not Lick this Book: CF Edition by Idan Ben Barak & CFWA
Children’s book
Min is a microbe. She is small. In fact so small that you’d need to look through a microscope to see her. Or you can simply open this book and take Min on an adventure to amazing places she’s never seen before – like the murky depths of your lung.
Alex the Kid Talks About CF by Alex Hurley
Children’s book
Alex lives with CF and shares with readers the importance of doing many “jobs” to care for his CF. A great story to share with the siblings, friends, family members, and classmates of those living with CF.
Having CF Is A Lot Like Being A Super Hero by Dr Kelsey M. Finn
Children’s book
This book tells the story of Jack, a boy who has CF, and his CF Superpowers. This book is intended to help children understand what CF means for themselves or someone they know who is affected by CF.
Diary of a CF Kid by Tim Sweeney
Graphic novel, young reader
This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily?
Salty by Sandi Parsons
Children’s book, young reader
Dara is in Year 6 and trying to fit into a new school. She longs to have a best friend, someone she can hang out with and has a plan to become besties with the popular girls. But Dara has a secret. What’s Dara hiding? And will it impact her dreams of popularity?
Ghosts by Raina Telgemeier
Graphic novel, young reader
Catrina and her family move to the coast of Northern California because her little sister, Maya, has CF and will benefit from the cool, salty air. As the girls explore their new home, a neighbour lets them in on a secret: there are ghosts in Bah’a de la Luna.
Five Feet Apart by Rachael Lippincott
Romantic drama, adult
Five Feet Apart tells the story of Stella and Will – two teenagers with CF – their struggles, and the love that blooms between them in the most star-crossed of places.
Maybe Now by Colleen Hoover
Contemporary romance, adult
Maggie decides to live her life with CF to the fullest and fulfill her dreams before it’s too late. She embarks on a series of adventures, which helps her find happiness and a sense of purpose.
The Ghost Walk by Karen Herbert
Medical Thriller, adult
The Ghost Walk is a psychological medical thriller about Ruby Rose, who has CF and is a recipient of a life-saving lung transplant from Dr. Gabriel Beaufort. The story begins when Dr. Beaufort is found dead in the wetlands near the hospital and Ruby starts to investigate his death, questioning how well she truly knew him and uncovering secrets connected to his life and work.