Nearly a third of people with CF in WA live regionally. Our aim is to bring equitable services and support across the whole of the state. If you require support in your area, please contact our Services team on services@cfwa.org.au or 08 6224 4100.
Outreach
Our services team can offer a diverse range of services when we come to your community. This can include:
- School and community education sessions; including early learning centres, schools, community groups, workplaces and extended family
- Health professional education including hospital staff, allied health, community nurses and GPs
- Physiotherapy assistance, advice and education
- Psychosocial support
- Individual and peer support
Regional Subsidies
CFWA Regional Subsidies
- Regional Travel Subsidy – Individuals attending CF related hospital appointments or admissions can receive between $50-$100 per visit, depending on distance travelled.
- Sibs & Kids’ Camp Subsidy – Travel subsidy to assist regional children to attend our annual Sibs & Kids’ Camp. Information included in Sibs’ Camp registration pack.
External Regional Subsidies
- PATS – If you live more than 100kms from hospital, PATS can provide assistance towards travel expenses and accommodation where eligible.
Connect Programs
Our Connect programs offer online sessions to connect children and adults with CF, facilitated by our Services team. These programs are available to people across WA and new participants are welcome at any time.
CF Kids Connect
CF Kids Connect is for children with CF in two age groups; 5-8 and 9-12 years. It offers a place to connect, build friendships and participate in fun group activities from home. They include age-appropriate, engaging activities such as LEGO, art, craft, playdough, STEM, baking and more. We also run sessions to include young carers such as siblings and offspring.
To learn more about this program and see our term planner, click here.
CF YOUth Connect
CF YOUth Connect is for young people with CF aged 12-17 years. Sessions include a range of activities like quizzes, games, craft, guest speakers and more. Each session has a different theme, and participants are encourage to help plan and brainstorm future activities – making the group their own!
To learn more about this program and see our term planner, click here.
CF Parent Playgroup
The CF Parent Playgroup is an online playgroup and parent support group for parents of children with CF aged 0-4. The program hopes to create connection, friendship and a safe place to talk about all things parenting and beyond!
To learn more about this program, email services@cfwa.org.au.
Ronald McDonald House
Parents of a CF child, who live more than 100kms away, and is admitted to Perth Children’s Hospital, are welcome to stay in the Ronald McDonald House (RMH) Accommodation.
The warm and supportive home-away-from-home provides parents with a comfortable place to stay and peace of mind, knowing they can stay right near the hospital.
For more information about RMH accommodation in Perth, click here.
Regional Health Professional Training
Our Education team are available to provide education to health professionals in both metropolitan and regional areas. You can get in touch to arrange education on education@cfwa.org.au.
Health Professionals Website
We have a dedicated CF website, especially for health professionals learning more about CF. Share this link with your local GP or other health professional. www.cfwa.org.au/health-professionals