I live in Melbourne and was diagnosed with CF as a toddler. I went to university and after I graduated, started working as a primary teacher. I am also working as the Ambassador for CF Victoria, raising awareness and spreading the word about CF. I also like going to the gym and travelling, and achieve incredible things. I also am very happy to say that I got married a short time ago too.
Kylie answers a member question about finding reliable information about CF.
” I am 11 years old and want to find out more about my CF. I have googled CF on the internet but find it hard to understand what the information means and some of the information I have found has made me feel worried. How did you learn about your CF and what do you do if you don’t understand something or feel worried about what you learn?”
Kylie: I have to agree that some of the information you find on the internet can be a bit worrying and it can also be out-dated. There are plenty of other ways to find out about CF. We didn’t have the internet when I was growing up, so I had to rely on my parents, doctors and friends as sources of information. My advice is to always ask your parents and talk about CF with your family, and if they don’t have the answers or information you require, the doctors and physiotherapists will definitely be able to help you.
The doctors and physios have always provided me with all the important information about CF throughout my life. I remember when I was about your age; I would always make sure I had one question to ask my doctor at every appointment. So next time you are due for a check-up, make sure to write down some questions and your doctor will be really excited to answer these or reassure you about any worries.
CF friends or buddies are another good information source, but just remember CF affects everyone differently. Learning about CF is something that you will do for the rest of your life because there are always going to be advances in treatment and medications.
Interview from Rozee, 2014.