Hi, I’m Dan, I’m 24 and I have CF. I was diagnosed at 3 months old, and after spending a short period of time in hospital, I remained healthy and well enough to avoid hospital again until I was 15 years old. When I got to about 21-22 my health started degrading to a point where I was considered for a lung transplant, but I’ve been able to delay it with physio and treatment. I stay in hospital 3-4 times per year.
I grew up in Perth, and I’ve only done a little overseas travel, but I’m planning a few more trips for the end of this year, and next year. I’m most comfortable at home in front of my computer though, playing videogames and surfing the net. I also love taking my car for a spin, and always miss it while I’m in hospital.
My life has been pretty decent so far, and I’m looking forward to enjoying many, many more years in the future. I hope any advice I can give you will improve how you manage your CF and other related issues.
Dan answered a member question about taking enzymes at school:
I am finding it really embarrassing taking my enzyme tablets at school in front of other kids. I am getting teased about it. What can I do?
As we all know, having CF means being inconvenienced by having to take enzymes, other tablets and inhalers at regular periods in the day, and some kids may be embarrassed to be seen taking their enzymes in front of their class mates, in case they’re seen as different or abnormal. Some kids with CF may have even been teased at school over taking their enzymes during recess or lunch.
Sometimes, the best way to avoid embarrassment, is to bring the reason you’re taking them to light – let any curious kids know the reason you have to take enzymes before food. If you’re particularly knowledgeable about your condition, you can always ask your teacher if you can do an “AMA” (Ask Me Anything) about CF for your class. I did this in grade 5, 6 and 7. I stood up in front of the class, outlined the basics of CF and answered any questions as best I could.
While you shouldn’t let your fears overcome you, if you feel uncomfortable explaining your condition at the time, you can always go to the toilets to take your pills before eating, or ask your teacher if you can take them in class after your classmates leave for the playground.
Interview from Rozee, 2013.