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COVID Information and CFWA Support

We have compiled some COVID information including; information from the hospitals, government updates, changes to our services and available support and lots of useful links and resources.

CFWA Services

Visiting the Office

Our office staff have now returned to our normal working arrangements and the Niche office is open Monday to Friday, other than in exceptional circumstances. If you would like to call in, we’d be pleased to see you. The office is now open to visitors and masks are no longer required in the Niche.

A number of our staff work part-time or from home on certain days. If you wish to meet a specific staff member or have a particular support need, please contact us on 08 6224 4100 so we can book a suitable time.

CFWA Community Support Workers

Our Community Support Workers (CSWs) have returned to face-to-face visits but, please be assured we continue to have risk management practices in place. If a CSW is COVID positive, a 7-day isolation period is our default position as per the requirements from the WA government for health services. If a CSW becomes a close contact, they will communicate with you prior to visiting to discuss their circumstances. If a CSW is unwell or has symptoms, your visit will be rescheduled or moved to remote if possible.

Please let your CSW know if you have any queries or concerns regarding this. As always, if someone in your household tests positive, is unwell or has symptoms; or is a close contact, please contact your CSW. We will work with you to provide the support you need safely.

We thank you for your patience and understanding throughout the year.

Other CFWA Services

Other CFWA services are operating as usual. Please contact us to discuss your needs or read more about our services on our website.

Hospital & Clinic Visits

Individual advice regarding clinic visits and admissions will be provided by your CF team, for any inquiries please contact your clinic directly.

COVID infection and other seasonal viruses may increase pressure on hospital beds so admissions may be delayed in some cases. Your CF team will ensure you get a bed as soon as possible. If you have significant concerns that a delay or rescheduling may impact your/your child’s health, please contact your CF clinic team to discuss.

If you or your child are extremely unwell, go to Emergency for assessment or dial 000 in an emergency.

Perth Children’s Hospital

PCH have created a COVID information hub to help you stay as up-to-date and informed as possible on the current restrictions, changes and information about COVID and what that means for your child. If you have any questions or concerns, please contact Charlotte Burr at PCH.CF@health.wa.gov.au

Sir Charles Gairdner Hospital

The SCGH CF team have put together a plan that will be individualised to each person’s needs. Please keep in contact with the team and do not hesitate to get in touch if you are unwell.

  • If you contract COVID, please advise your CF team immediately (even if you do not have symptoms)
  • If you have not been fully vaccinated or are immunocompromised (post-transplant), and have COVID, Antiviral treatment may be available within 5 x days of infection (administered based on State policy criteria)

Fiona Stanley Hospital

Fiona Stanley Hospital (FSH) have provided the following information on outpatient appointments during COVID.

  • The team at FSH have put together a useful COVID fact sheet for people who are post transplant or otherwise immunocompromised. COVID information for people who are immunocompromised (post-transplant) Fact Sheet.
  • Lung transplant recipients should ensure their home spirometer is in working order and perform regular checking of spirometry. Contact the Transplant Unit through Sharon Lawrence if you are in need of a new spirometer.

Please contact the hospital team directly for further information or if you have any concerns.

Vaccination & Boosters

For the latest information please visit the Healthy WA website.

Who is eligible?

  • Vaccination is recommended for everyone in Australia aged 5 years and over.
  • COVID-19 vaccines are safe for children.
  • Results of a recent clinical trial demonstrate that both the Pfizer and Moderna vaccines are highly effective and that most side effects are mild and short-term.
  • The TGA carefully evaluated available data for both vaccines to support their safety and efficacy among children.

Children and teens aged 5 to 15

  • Children and adolescents aged 5-15 years are up to date after completion of a primary course of vaccination. A booster dose is not currently recommended for this age group.

People aged 16 years and older

  • Everyone aged 16 years and older is recommended to receive a COVID-19 vaccine booster dose to maintain an ‘up to date’ status.
  • This booster dose is now recommended from 3 months after the last primary dose. This is called the ‘due date’.
  • Initial protection is reduced, and increased waning is evident following primary COVID-19 vaccination (usually 2 doses) against the Omicron variant. This warrants the inclusion of booster doses in a person’s up to date status.

Severely immunocompromised people

  • Severely immunocompromised people aged 5 years and over require a third primary dose of a COVID-19 vaccine from 2 months (and no later than 6 months) after dose 2 to remain up to date.
  • People aged 16 years and over are recommended a booster (fourth) dose, 3 months after dose 3 of their primary vaccination course. However, for the purpose of being up to date in the Australian Immunisation Register (AIR), which does not contain any information on medical conditions, only a total of 3 doses will be counted as being up to date.

People who have had COVID-19

  • To be considered up to date with COVID-19 vaccination, you must have completed all the doses recommended for your age and health status.
  • If you had a confirmed COVID-19 infection you should defer vaccination for 3 months. You are considered ‘up-to-date’ during this period. The next scheduled dose of COVID-19 vaccine should be given as soon as possible after 3 months following a COVID-19 infection.
  • For people who have been infected and are required to prove they are ‘up-to-date’, a temporary medical exemption may be applicable. People should speak with their healthcare provider about what is best for them.
  • Refer to ATAGI clinical guidance on people with a past SARS-CoV-2 infection.

Mixing vaccines

  • Vaccine schedules using mixed or the same brand of COVID-19 vaccine are acceptable for being considered up to date. The TGA is currently considering which vaccines, not already approved for use in Australia as a booster, will be recognised as valid by the Australia Immunisation Register, as a booster dose (e.g. if received overseas).

Book your COVID-19 appointment

  • There are appointments available now and everyone who is eligible, but not yet had their first or second booster is encouraged to do so.
  • Parents of children aged 5 years and older who haven’t received a COVID-19 vaccine are also encouraged to book one today.
  • Parents of children aged 6 months to under 5 years at increased risk of COVID-19 are also encouraged to book their child’s COVID-19 vaccination.
  • Find a clinic and book.

Symptoms

Healthdirect have produced a COVID-19 symptom checker that may be useful if you are experiencing symptoms.

If you or the patient are experiencing any of the following: central or crushing chest pain lasting more than 10 minutes, unconsciousness or a seizure (fit), severe difficulty breathing or turning blue, severe bleeding or inability to control bleeding with pressure, sudden inability to move or speak, or sudden facial drooping, the effects of a severe accident, Call triple zero (000) immediately.

Being Prepared at Home

Here are a few simple ways you can prepare your home for another spike of COVID in the community.

  • Make sure you stock up on masks and hand sanitiser.
  • Ask visitors to your home to practice hand hygiene as this is the best defence we have against COVID. More information.
  • You may want to pick up some RATs.
  • CFWA may have stock available in an emergency if you are unable to source elsewhere, please contact us.
  • It may be helpful to prepare a “COVID kit” with paracetamol, electrolyte drinks, two weeks of any prescription medications, hand sanitiser and masks.

COVID Ready Plan

There is also a useful COVID Ready Plan you might like to download and fill out. The plan lists important information about you, your family and the people in your household which you can share with people who may be helping you if you test positive for COVID, such as your doctor/healthcare providers, family/friends, carer and community support services.

Mental Health Support

The impacts of COVID can cause us to feel anxious, overwhelmed and increasingly stressed which makes it even more important to be aware and take care of our mental as well as physical health.

To access counselling and general support contact our Senior Therapist deidre.gorrie@cfwa.org.au or our Youth Social Worker Haylee is also available to support young people and can be contacted at haylee.riddell@cfwa.org.au.

Mental Health Resources

Some useful resources offering specific tools and advice for managing your mental health and wellbeing during COVID:

Financial Support

We know some people may experience additional financial strain due to COVID. Many people are feeling the effects on the economy, work hours, the cost of housing etc, on top of out of pocket costs for healthcare and medications. If you are experiencing hardship or struggling with basic, daily living; please contact us.

We can work with you to understand your circumstances and how we might be able to support you. This might be financially, through equipment/supplies or vouchers or through linking you with other organisations for additional support. We obtain grants and donations that change all the time. Often we can help, whether it is a longer term need or just some short term support. Please get in touch with Deidre at deidre.gorrie@cfwa.org.au to find out how we can currently help.

People with CF & COVID

Evidence shows people with CF are not more susceptible to COVID and overall do not seem to fair worse. The exceptions to this would be those with low lung function and post-transplant.

  • Vaccination is recommended for all people with CF who are eligible.
  • Click here for Global CF Registry COVID and CF data
  • Click here for a recent study on people with CF and COVID
  • Click here for some information on COVID and CF from Telethon Kids Institute

Resources & Links

COVID Information

CF and COVID

Masks and PPE

Children and Families

Mental Health

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