CFWA - Cystic Fibrosis WA

Coronavirus (COVID-19) and CFWA Update

In line with government guidelines, the CFWA team are working from home this week, with services to members continuing, other than hospital visits and some event postponements. We will be back in the office on Monday 3 May.

Unfortunately we had to postpone the CFWA and Wal-yan Respiratory Research Centre Evening with CF Scientists 2021 which will now take place on 30 June.

Home-care worker services are still running; and we are able to run remote airway clearance sessions via FaceTime or Zoom with remote families or those who would prefer this method.

Further updates will be provided as they become available. For any member services queries, you can contact Kathryn via email servicesmanager@cfwa.org.au or on 0419 926 277; or for event queries please contact events@cfwa.org.au.

News

CFA Trikafta Update, 5 May 2021

CFA Trikafta Update, 5 May 2021 Nettie Burke, CEO Cystic Fibrosis Australia It is almost a fortnight since we heard the disappointing news that...

The Cystic Fibrosis Abbie Fennessy Memorial Fellowship sponsored by Mediplast

The Cystic Fibrosis Abbie Fennessy Memorial Fellowship sponsored by Mediplast Grant Alert! Cystic Fibrosis Australia (CFA), in conjunction with Mediplast (formerly Technipro-PulmoMed), is pleased to...

Cystic Fibrosis WA $37,500 PhD Top Up Scholarships

Cystic Fibrosis WA $37,500 PhD Top Up Scholarships About Cystic Fibrosis WA Cystic Fibrosis Western Australia (CFWA) is a charitable not-for-profit association incorporated in WA,...

Trikafta PBAC Outcome

CFWA wishes this was better news. The PBAC are deferring Trikafta. Please view the CFA media release below. We know this news will be very...

Events

APR-JUN 2021

Backyard Bootcamp Reboot

Are you looking for a fitness challenge, or a fun way to get your family active? Take the Backyard Bootcamp challenge in support of children and adults living with cystic fibrosis (CF) in WA.

15 MAY 2021

Ladies' High Tea

Female parents and carers are invited to attend this fun afternoon filled with delicious food, champagne, raffles and prizes.

28 MAY 2021

65 Roses Day

Friday 28 May is 65 Roses Day, our day of CF awareness. On 65 Roses Day we paint Western Australia with beautiful fresh roses to raise vital funds and awareness for people living with CF, but we need your help to do it!

30 Jun 2021

CF Scientists Evening

Join us for the annual CF research update from CF researchers at Telethon Kids Institute. The evening includes laboratory tours, presentations, and an opportunity to chat with researchers.

7-8 AUG 2021

Australasian CF Conference

The 2021 CF Conference, due to be held in Hobart, will be held virtually due to COVID-19 related limitations. There will be an outstanding array of speakers all sessions will be available for viewing on Consumer Connect.