CFWA - Cystic Fibrosis WA

Bunbury Evening with CF Scientists

Join us for an annual CF research update from researchers at the Telethon Kids Institute AREST-CF team.

We’re delighted to announce that Professor Stephen Stick who heads the team will be guest speaker, presenting the team’s latest research.

This is an amazing opportunity to hear from a world renown expert in the field of CF.

More info

News

Introducing Maggie

Welcome to our new team member Maggie! Hello everyone, my name is Maggie and I am the new Resource Development and Training Officer. I am...

Orkambi Access October 1

ORKAMBI Access 1 October 2018 Greg Hunt MP has announced that ORKAMBI (lumacaftor/ivacaftor), the first medicine to treat the underlying cause of cystic fibrosis in...

PCH Orkambi Roll-out Information

PCH Orkambi Roll-out The CF team at Perth Children’s Hospital have provided us with the following statement regarding the rollout of Orkambi: Dear CF families,...

Sibs Camp Coming Soon!

2018 Siblings & Offspring Camp The CFWA Siblings’ and Offspring Camp is coming soon! This camp is FREE for all participants thanks to generous support...

Events

23 NOV 2018

Bunbury Evening CF Scientists

Join us for an annual CF research update from researchers at the Telethon Kids Institute AREST-CF team.

2 DEC 2018

Charitable Acts

Heaps Cool Music are hosting a ‘Charitable Acts’ show this December and have chosen to raise awareness and funds for cystic fibrosis at the same time.

1-25 DEC 2018

Consulate Court Christmas Lights

This very merry cul-de-sac in Thornlie will be lighting up their street in Christmas colours this December, to raise funds for cystic fibrosis.