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How We’re Supporting our Members During Covid-19

COVID-19 Member Support

As we enter a 5 day lockdown, we hope you are all keeping well and safe. CFWA are available for support to members during this time.

Contact the Team

CFWA have made the decision to shut the office for the next 5 days, however staff are working from home and still available to contact via email.

Getting Tested

If you or a loved one needs to get tested, a full list of testing centres is available here. There are now also drive through locations open as of 1st February. No referral or appointment necessary. Click here for more information.

Accessing Masks

Disposable masks are available for purchase in most pharmacies, grocery stores and many online outlets (if not sold out). If you are unable to source any, there are options to make your own or purchase reusable ones. Here’s a great list of where to buy reusable masks in Perth

If you are stuck, there are some options for a DIY mask in the interim:

Homecare Worker (HCW) Service

We have made the decision to suspend this face-to-face service for the 5 days of lockdown to avoid any possibility of risk while the situation unfolds.

Any airway clearance or exercise sessions which can be conducted remotely are still able to go ahead. Please contact your HCW to organise remote sessions if you are interested.

If you have any questions or concerns, please email Sam on physio@cfwa.org.au or 0414 240 299 to discuss.

Counselling and General Support

Mental Health Support

Please contact Kathryn for counselling or general support via email servicesmanager@cfwa.org.au or on 0419 926 277. Support is available over the phone or via video call. Our Youth Social Worker Haylee is also available to support young people. Contact her on socialworker@cfwa.org.au or 0400 305 546.

If you require further support, you can access a clinical psychologist via Telehealth, which the government announced will be bulk billed with your existing or new mental health care plan from your GP.

For further information on Mental Health Care Plans and Rebates, click here.

We also have the following factsheets available:

Hospital Support

Until restrictions are further lifted, we are currently unable to provide hospital visits.

School and Community Education

We are still offering education sessions for teachers, sports coaches, friends, family, and anyone else you can think of via Zoom video conferencing and in person where possible. Our sessions can be tailored to suit any need but small overview of some of the information that would be covered during an education session is:

  • What is CF
  • Symptoms of CF
  • Treatments
  • Supporting students with CF
  • Considerations specific to your child

We understand that many schools and community groups are reducing the number of meetings they host and may not be able to hold an education session. In this case, head over to CFSmart for free CF e-learning modules and heaps of resources.

If your child’s class is ready to learn about germs and handwashing, please get in touch with Maggie at education@cfwa.org.au for more information.

Health Professional Education

CF education for health professionals can be provided via video conferencing using either Microsoft Teams or Zoom VC platforms .

We also have a Cystic Fibrosis for Health Professionals website. Click here to view the website. Please contact Sharon at nurse@cfwa.org.au for more information.

Member Events

Member events will be assessed on an individual basis based on government advice and restrictions at the time. Check out our Upcoming Events page for more details.

Regional Support

If you need  support in your area get in contact with Kathryn on servicesmanager@cfwa.org.au or 08 6457 7333. Go to Regional Support for ways we can support you.

Fundraising

Community Fundraising

If you were planning a fundraiser which has been disrupted by the events of this week, please reach out to our fundraising team on events@cfwa.org.au so they can work out how to best support you and your efforts. There are lots of things CFWA can do and plenty of resources which can help your fundraiser go ahead, even in a lockdown situation.

Fundraising Facebook Group

We’ll be posting any news and updates regarding fundraising to the ‘CFWA Fundraising Community’ Facebook group. To stay up to date with CFWA’s fundraising activities and community fundraising, please join the group by clicking here.

Useful Resources and Links

COVID-19 Information

  • Coronavirus Australia App: Real time advice and information about COVID-19 through a free Government app. To download on your phone or tablet, search ‘Coronavirus Australia’ in the Apple App Store or on Google Play
  • The Australian Government has also created a WhatsApp group to disseminate information. This new service would allow the Government to directly provide Australians with health advice, updates on lockdown measures and other accurate and timely information. To activate the WhatsApp channel on your phone, visit aus.gov.au/whatsapp to download WhatsApp to your phone (if you don’t already have the app) and launch the new feature.
  • COVID-19 National Health Plan (Health Department)

CF and COVID-19

Children

Mental Health


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